Time for a little medical update.
I had my weekly visit to the oncologist yesterday.
You all will be happy to know that my weight has continued to stay consistent. I fluctuate by 2 pounds weekly -- This has my doctor very pleased since he wants me to maintain my current weight. My counts were very good. White Blood Cells at 10K so the Neulasta injection the day after Chemo really did its job and the bone pain was not as intense this go around. I did still feel the little teeny tiny bones in my ears but only for a short time.
I took several questions to this appointment and received some answers that I want to share with you all.
1) Hysterectomy vs. Ovary & Tube Removal
I am leaning towards having all of my remaining lady bits removed for a myriad of reasons. My ONC is not in disagreement. A few things need to be discussed before a final decision can be reached. There are the results of one more genetic test (CHEK2) that are pending. The idea of what poses less toxicity to my system and a conversation with my OBGYN. Next week I will meet with my OBGYN to discuss toxicity and a few other things. My blood is currently being tested for the CHEK2 gene (results take close to 6 weeks.) Since my cancer is hormone receptor positive I really have to do something to curb the normal hormone producing process in my body and the idea that once off Chemo (which has thrown me into menopause) to only go through menopause again at the "normal" time seems like a twisted joke. But I will patiently await more information.
2) How long after Chemo before starting on Tamoxifen or Aromatase Inhibitor with/without Zometa
My ONC was one of the authors on the recent big study on Zometa and feels it may not be the best option for me. A Bone Density study will be needed before any decisions are made along with the final decision on question 1. If my ovaries remain inside of me (for whatever reason) then I would be on Tamoxifen for the next 5 years (taken like a vitamin) but if I am without them then I would be on an Aromatase Inhibitor.
I DO NOT need radiation -- Yeah!4) Tumor Markers
These will be monitored regularly after my last Chemo forever and ever.The current post Chemo plan of attack is to begin the healing and recovery process for my mind, my body and my spirit and will include:
Port-A-Cath removal -- done in hospital but out patient procedure. I will need DDAVP prior (this is the clotting factor my body does not produce enough of [see earlier post on Von Willebrand's]). This may be done with the following or on its own. Since my body heals a bit slowly from surgery due to the VW my ONC wants to keep things as simple as possible since the end results will be the same.And now for my Chemo Side Effects update. I am continuing to feel good and am grateful for the good days and the ability to go out and about and do things. I am listening to my bodies cues and trying to not overdo it. If I need to rest I rest. The last couple of days I have been experiencing an odd feeling in my lower legs (knees down to feet) -- kind of a heavy feeling as if I am wearing lead ankle weights. No need to worry -- I am checking in with my ONC daily. My ankles are not swollen and I am elevating my legs even as I type this. I will keep you in the loop. I am (with my ONC's blessing) continuing to exercise lightly during this as well.
Lady Bit removal surgery -- pending answers to questions above. I foresee earliest I would be able to do this is in early September.
Reconstruction surgery -- if all goes well I can proceed with this surgery 3 to 6 months following my last Chemo (so I am thinking somewhere between 10/29/08 & 1/29/09) -- If you know someone who had reconstruction surgery and they were happy with their surgeon please let me know.
The buzz cut continues to make me happy.
The hot flashes continue to make me hot and I seem to be waking between 4A and 5:30A daily... only to go back to sleep until the alarm sounds.
That's my medical news thanks for reading.